Year: 2021

Inherited Bleeding Disorder May Lower Risk of Thrombosis with COVID-19 Infection 1 in 5 of women with heavy periods will have an underlying bleeding disorder Tuesday 13th April, 2021: Von Willebrand Disorder (VWD), an inherited bleeding disorder which affects the blood’s ability to clot, may lower the risk of thrombosis with COVID-19 infection1. That’s according …

Inherited Bleeding Disorder May Lower Risk of Thrombosis with COVID-19 Infection Read More »

COVID19 vaccines, including the AstraZeneca (Vaxrevia) vaccine, play an important role in containing this pandemic infection and in preventing COVID19 disease, which can be a severe condition with an increased risk of thrombosis. The National Immunisation Advisory Committee (NIAC) has recommended that the Astra Zeneca (Vaxrevia) vaccine can be used as part of the vaccination …

Information for NCC patients regarding the Astra Zeneca COVID19 (Vaxevria) vaccine Read More »

Below is a joint statement from WFH and EHC on AstraZeneca COVID-19 vaccine – April 12, 2021 EMA, ISTH, WHO and many countries recommend benefit of COVID-19 vaccination outweighs the risks Risks of adverse events no higher in people with bleeding disorders The European Medicines Agency (EMA) Pharmacovigilance Risk Assessment Committee (PRAC), following investigation of …

WFH and EHC release joint statement on AstraZeneca COVID-19 vaccine Read More »

First published in our regular e-Zine on April 9, 2021 Covid-19 Vaccination The Society have been receiving a significant number of queries in relation to Covid-19 vaccination. Questions have been asked about prioritisation, where people will receive the vaccine, precautions to be taken when receiving an intramuscular injection and specific concerns about the Astra Zeneca …

An Update from I.H.S CEO on Covid-19 Vaccination Read More »

Haemophilia B Gene Therapy and Hepatocellular Carcinoma In December 2020, a case of hepatocellular carcinoma (liver cancer) was reported in a man with haemophilia who was participating in a FIX Gene Therapy clinical trial called the HOPE-B trial. This is relevant here as three Irish people with haemophilia are included in the 54 people who …

Haemophilia B Gene Therapy and Hepatocellular Carcinoma Read More »

Join the Irish Haemophilia Society for World Haemophilia Week 2021 as we focus on von Willebrands Disorder (VWD). We fully appreciate the need for greater education about VWD, greater public awareness and greater emphasis from the Society. To this end, VWD will be the focus of our events this year and we plan almost a …

World Haemophilia Week :: 2021 Theme :: von Willebrands Disorder Read More »

Below is a statement from the National Coagulation Centre (NCC) regarding the Astra Zeneca COVID19 vaccine: On 18/03/2021, the safety committee of the EMA released a statement which confirmed that the benefits of the Astra Zeneca COVID19 vaccine continue to outweigh the risk of side effects. In particular, there is no evidence that the vaccine …

Information for NCC patients regarding the Astra Zeneca COVID-19 vaccine Read More »

The following is a statement from the European Haemophilia Consortium (EHC) commenting on the European Medicines Agency (EMA) statement regards Covid-19 AstraZeneca vaccine: 19 March 2021 The European Haemophilia Consortium (EHC) has been closely monitoring the recent safety signal of blood clots in some recipients of the COVID-19 Vaccine AstraZeneca and wishes to inform its …

EHC Position Statement on COVID-19 AstraZeneca vaccine Read More »

Below is the European Medicines Agency (EMA) statement regards the Covid-19 Vaccine AstraZeneca: COVID-19 Vaccine AstraZeneca: benefits still outweigh the risks despite possible link to rare blood clots with low blood platelets EMA’s safety committee, PRAC, concluded its preliminary review of a signal of blood clots in people vaccinated with COVID-19 Vaccine AstraZeneca at its extraordinary …

EMA statement regards the Covid-19 Vaccine AstraZeneca Read More »