Haemophilia B Gene Therapy and Hepatocellular Carcinoma In December 2020, a case of hepatocellular carcinoma (liver cancer) was reported in a man with haemophilia who was participating in a FIX Gene Therapy clinical trial called the HOPE-B trial. This is relevant here as three Irish people with haemophilia are included in the 54 people who …
Haemophilia B Gene Therapy and Hepatocellular Carcinoma Read More »
Join the Irish Haemophilia Society for World Haemophilia Week 2021 as we focus on von Willebrands Disorder (VWD). We fully appreciate the need for greater education about VWD, greater public awareness and greater emphasis from the Society. To this end, VWD will be the focus of our events this year and we plan almost a …
World Haemophilia Week :: 2021 Theme :: von Willebrands Disorder Read More »
Below is a statement from the National Coagulation Centre (NCC) regarding the Astra Zeneca COVID19 vaccine: On 18/03/2021, the safety committee of the EMA released a statement which confirmed that the benefits of the Astra Zeneca COVID19 vaccine continue to outweigh the risk of side effects. In particular, there is no evidence that the vaccine …
Information for NCC patients regarding the Astra Zeneca COVID-19 vaccine Read More »
The following is a statement from the European Haemophilia Consortium (EHC) commenting on the European Medicines Agency (EMA) statement regards Covid-19 AstraZeneca vaccine: 19 March 2021 The European Haemophilia Consortium (EHC) has been closely monitoring the recent safety signal of blood clots in some recipients of the COVID-19 Vaccine AstraZeneca and wishes to inform its …
EHC Position Statement on COVID-19 AstraZeneca vaccine Read More »
Below is the European Medicines Agency (EMA) statement regards the Covid-19 Vaccine AstraZeneca: COVID-19 Vaccine AstraZeneca: benefits still outweigh the risks despite possible link to rare blood clots with low blood platelets EMA’s safety committee, PRAC, concluded its preliminary review of a signal of blood clots in people vaccinated with COVID-19 Vaccine AstraZeneca at its extraordinary …
EMA statement regards the Covid-19 Vaccine AstraZeneca Read More »
National Procurement process for Extended Half Life Factor IX concentrate has just been completed by the Haemophilia Product Selection and Monitoring Advisory Board (HPSMAB). The Society are represented on this Board by Declan Noone and Brian O Mahony who is the Vice-Chair of the Board. The contract to be awarded is for a two year …
Our Conference & AGM 2021 took place virtually this year, with sessions taking place over the evenings of March 1 – 4. We are very pleased with how the conference went and are thrilled that so many of you could make it. We hope all of you who attended enjoyed the conference and found the …
