News 2020

Plan for Beginning Hemlibra

We had another very successful Webinar yesterday; a very interesting and engaging session on Hemlibra with Dr Beatrice Nolan and CHI Crumlin colleagues. We should have a transcript of the session soon but as requested yesterday, the team @ CHI Crumlin Read more >

Strategic Plan 2020 – 2024

Following much work and consultation, the board and staff of the I.H.S. completed a new Strategic Plan to run from 2020 to 2024. This new plan will guide our direction and activities for the next number of years as we Read more >

Dental Services Update for CHI at Crumlin

We appreciate that at this time you may be worried about your child’s dental and oral health and how to access dental care should your child experience toothache, dental infection or dental trauma. The team at Children’s Health Ireland (CHI) Read more >

Update from I.H.S. CEO | April 24, 2020

EAHAD We were very pleased to see that Mary Kavanagh, the Nurse specialist from Children’s Health Ireland at Crumlin has just been appointed as the new Chair of the European Association of Haemophilia and Allied Disorders (EAHAD) Nurses committee. This Read more >

Physiotherapy Update: National Coagulation Centre, St James’s Hospital

Just a short note to inform you that the physiotherapy team in the National Coagulation Centre in St James’s Hospital, will be doing a survey of people with severe haemophilia that attend the National Coagluation Centre. They will be looking Read more >

Mary Kavanagh Appointed new Nurses Committee Chair for EAHAD

We were very pleased to see that Mary Kavanagh, the Nurse specialist from Children’s Health Ireland at Crumlin has just been appointed as the new Chair of the European Association of Haemophilia and Allied Disorders (EAHAD) Nurses committee. This is Read more >

Physical Activity Resources for Children & Adolescents with Haemophilia

Keeping active, given the current situation we find ourselves presented with, is not without its challenges. The same goes for activity for children & adolescents with Haemophilia – thankfully we can help with the latter. We have been sent ‘Physical Read more >

EHC Discussion: Future Perspectives & Bleeding Disorders Treatment Options

Much like ourselves, the current COVID-19 pandemic has scuppered the European Haemophilia Consortium (EHC) events and World Haemophilia Day plans. They, like us, are continuing to organise events, talks and engage online. Below is a discussion on ‘Future Perspectives and Read more >

More Webinar and Q&A Sessions

Following the success of our two Webinars and Q&A Sessions last week, we have decided to continue with the series. Further meetings have been organised for; Wednesday, April 22nd @ 11am. Haemophilia Care in Europe (Brian O’Mahony, I.H.S. CEO) Wednesday, Read more >

Haemophilia & Covid-19: The Implications for Haemophilia Services (Q&As – CHI Crumlin)

On April 14th, the Society organised the first in a series of Webinar meetings for members via Zoom. This first meeting was with the team from the paediatric comprehensive care centre in Crumlin. Below, there are detailed notes of the Read more >

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