News 2020

Merry Christmas from the I.H.S.

The Irish Haemophilia Society office will close for Christmas at 3pm on Wednesday, December 23 2020 & will reopen on Monday, January 4 2021 at 9am. In the case of an emergency, please call 01 657 9900 where contact details Read more >

Upcoming Webinars in January

Continuing with our series of Webinars and Q&A Sessions, we have further meetings coming up in the new year on; Wednesday, January 13, 2021 @ 6pm: Coping and resilience during the pandemic with Dr. Patricia Byrne Wednesday, January 27, 2021 Read more >

Hospital Opening Hours for the Christmas Period

As is the season, there will be some changes to hospital opening hours over Christmas. Please see below for details. National Coagulation Centre & H&H Assessment Unit – St. James’s Hospital Monday 21st – business as usual Tuesday 22nd – Read more >

Novel Treatments in Haemophilia & other Bleeding Disorders

A Periodic Review | 2020 – Issue 2 The therapeutic landscape in haemophilia continues to change rapidly and it can be difficult to keep up to date. The Society has adapted a publication compiled by the European Haemophilia Consortium to Read more >

Our Winter Mag Is Out Now!

Our Winter Magazine is out now & comes packed with loads of interesting articles from members and staff, news and updates, reports and more. 2020 has been a strange year to say the least and within the magazine we both Read more >

Gene Therapy Clinical Trial Reports Data – Including 3 Irish Participants

In March of this year, it was announced that the first Irish person with haemophilia had been treated with Gene Therapy for FIX deficiency. A further two people with haemophilia were then treated here in the same clinical trial. The Read more >

I.H.S. Online Christmas Quiz :: Dec 17

We have a Christmas Quiz coming up for members on Thursday, December 17 @ 6PM. The quiz will be suitable for all the family, with 4 rounds of 10 questions. So, join us to be in with a chance of Read more >

Watch: Hemlibra in Surgery and Dental Care Webinar

We’ve been uploading recordings from our ongoing series of webinars so you catch up on the ones you’ve missed at your convenience. The latest of which is ‘Hemlibra in Surgery and Dental Care’ with Dr Niamh O’Connell & Dr. Alison Read more >

AGM & Conference 2021

The Irish Haemophilia Society is delighted to announce a Virtual AGM & Conference 2021. The conference will take place March 1 – 4. The event is free to attend but you must register beforehand, and registration will be open in Read more >

Evaluation of Homescanning App

The team at the National Coagulation Centre is committed to improving the quality of care for people with bleeding disorders. A questionnaire, designed with input from patient representatives from the Irish Haemophilia Society, has been sent to all who attend Read more >


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