News 2017

Ageing Conference 2017

We are now living in a time where the first generation of people with haemophilia will have to confront the challenges of ageing. Many people with haemophilia can expect to live beyond their 70th or even 80th year. This is Read more >

Father & Son(s) Overnight

  Dates: Saturday 6th and Sunday 7th May, 2017. Venue: Lilliput Adventure Centre   We are pleased to announce details of our first father & son(s) overnight, which will take place over the weekend of 6th & 7th May, 2017 Read more >

AGM & Conference 2017 – Photos

Many thanks to everyone who attended our AGM & Conference 2017. We have uploaded photos from the weekend of our children’s groups, adult sessions and Gala dinner. Click here to view photos.  

Information Meetings – New Haemophilia B Treatment

  Following a recent tender/procurement process undertaken by the Haemophilia Product Selection Board (which includes both haemophilia doctors and the Society), the recombinant factor IX coagulation factor concentrate used for the treatment of factor IX deficiency will be changed from Read more >

Hepatitis C Open Conference

  Date: Saturday 13th May 2017 Venue: Castleknock Hotel, Castleknock, Dublin 15 This one‐day conference, (organised by the Irish Haemophilia Society) will be an opportunity for people with Hepatitis C, to receive updates on treatment, how to access treatment and Read more >

Presentations from the I.H.S. AGM and Conference, 2017

Here are some of the presentations from our AGM and Conference that took place over the weekend of the 3rd – 5th March, 2017. I.H.S. History: 1968 to 1982 AN UPDATE ON HAEMOPHILIA CARE VIETNAM: WHAT IS THE G.A.P PROGRAMME? Read more >

Clinical Trials

Gene Therapy The National Coagulation Centre (NCC) will be holding special clinics this month to offer blood tests to people with severe factor IX deficiency to assess their suitability for possible inclusion in a Gene Therapy clinical trial. Special clinics Read more >

Long-term Safety and Efficacy Extension Study Data of ALPROLIX, Extended Half-life Treatment for Haemophilia B Patients

  Alprolix is the new extended half life treatment that will be available to haemophilia B patients in Ireland from April 2017. Alprolix will allow patients to infuse less frequently (typically once a week instead of twice a week.) Alprolix Read more >