Understanding Gene Therapy

February 8th, 2019

With our Annual Conference coming up at the beginning of March, at which one of the major topics will be Novel Therapies, we will shortly have available a new Publication – an Update on Novel Therapies.

A major area of development in Haemophilia is in Gene Therapy. Several clinical trials are underway for both FVIII and FIX. Indeed, it is our clear expectation that some people with haemophilia here in Ireland will have an opportunity to participate in some of these clinical trials.

We understand that the science of Gene Therapy is complex and not always easy to communicate.

We are delighted therefore to announce that starting today, and weekly for the next 4 weeks, we will be posting a short video on Gene Therapy each Friday.

These short professionally produced videos were commissioned by the European Haemophilia Consortium. The 5 speakers were carefully selected, not only for their understanding of the topic, but for their clear ability to communicate this information.

The first video, available today is ‘What is Gene Therapy?’ with Prof. Flora Peyvandi from Milan.

This will be followed by:

February 15: An overview of Gene Therapy for haemophilia A and haemophilia B.

Speaker – Dr. Paul Giangrande from Oxford

February 22: How do Clinical Trials Work?

Speaker – Dr. Dan Hart from London

March 1: Safety in Gene Therapy

Speaker – Dr. Mike Makris from Sheffield

March 8: Gene Therapy – The Patient Perspective

Speaker – Jack Grehan from the UK

We hope you enjoy these short presentations. We would very much welcome your feedback and comments.

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