Governance & Policies
The Society has very strong financial governance and accountability in place that is overseen by our board of unpaid volunteers. We agree on annual detailed business plan with the Health Service Executive (HSE) and we were the first organisation receiving funds from the HSE in the area of Hepatitis C to sign a Service Level Agreement (SLA). Our funding from the HSE has been governed by a Service Level Agreement since 2009 and we have been fully compliant with the requirements of the SLA.
The public funding provided by the HSE to the Society is managed via their Hepatitis C office, although the funding relates to all the diverse activities of the organisation.
I.H.S. Chief Executive, Brian O’Mahony, stated: “The Irish Haemophilia Society utilises the funding received from all sources in a prudent, accountable and transparent manner to provide the maximum support and services to all those with inherited bleeding disorders.”
He added: “The HSE has acknowledged, in writing, the prudent manner in which the Society utilises the funding we receive”.
Ms Michele Tait, the HSE’s former Hepatitis C National Coordinator, stated that the Irish Haemophilia Society is a very efficient organisation.
She said: “The I.H.S. staff work extremely hard, are highly motivated and professional in their work, and they also engage in a highly positive manner with my colleagues and I in the HSE.”
Also, the Society’s innovative work on medication procurement with the haematologists, the HSE and Department of Health on the Haemophilia Product Selection and Monitoring Advisory Board, has resulted in savings to the exchequer of more than €180 million from 2002 to 2013.
Brian O’Mahony stated: “The savings we have achieved for the country are a multiple of the funding received by the Society. We remain committed to ensuring the provision of the safest and most efficacious treatment for haemophilia while achieving this at the lowest possible cost to the country.”
The Society also strongly welcomes the announcement of the appointment of a regulator to the charities sector and remain committed to continued proper, ethical and transparent use of all the funding received. The audited accounts of the I.H.S. are published each year in the Annual Report, which are available on this website.
The Society have the following policies in place:
• Child Protection Policy
• Complaints Policy
• Data Protection Policy
• Dignity at Work Policy
• Financial Policy
• Fundraising Policy
• Health & Safety Policy
• Help to Member Policy
• Apartment Facility Policy
• Conferences & Events Policy
• Internet & Email Policy
• Junior & Youth Membership Policy
• Member Outreach Policy
• Planned Giving Policy
• Member Support re: Social Welfare Policy
• Corporate Sponsorship Policy
• Travel Expenses Policy
• vCJD Policy
• Volunteer Policy
The Irish Haemophilia Society welcomes any written complaints received, as it is felt it will help us to continually improve our services.
A Complaints Policy has been put in place to encourage feedback. All complaints to the Irish Haemophilia Society will be dealt with constructively, impartially and effectively in accordance with our Complaints Policy.
If you would like to read more about our policy, or would like to make a complaint, please download the Irish Haemophilia Society Complaint’s Policy by clicking on the link below and forward same to:
Mr. Brian O’Mahony,
Irish Haemophilia Society,
Irish Haemophilia Society Complaints Policy