Education & School

Academically there is no difference between a child with haemophilia or a related bleeding disorder and an unaffected child.

Most severely affected children receive preventative treatment 2-3 times weekly at home which prevents most bleeding episodes. This is known as prophylaxis and requires intravenous (i.v.) injections. For children with severe factor VIII deficiency Hemlibra is an option, and is infused weekly or every 2 weeks subcutaneously (under the skin) thereby avoiding the requirement for regular intravenous injections.

It is important for you to attend school as much as possible. However, sometimes you may miss school when they are recovering from a bleed. Teachers should do their best to make you comfortable when you come back and to help you catch up on work they missed. On a programme of prophylaxis, a young adult or teenager with haemophilia should not miss out on schooling or education as a result of bleeds or joint damage.

The choice of college education and employment, therefore, for someone with a bleeding disorder should not differ from any of your peers. In each case, the choice of occupation is related firstly to the interests, abilities and skills of the individual and secondly to the severity of haemophilia. It must be emphasised that the majority of people with haemophilia find and keep satisfactory regular employment. Home treatment has enabled the person with haemophilia to also self-infuse factor concentrates at his place of employment if required, which ensures normal work attendance and promotes self-confidence with independence.