Irish Haemophilia Society

Mild Haemophilia Information Day
2024-09-14 12:00 - 17:00 (Europe/London) | Grand Hotel Malahide, Grove Road, Malahide, Co. Dublin, K36XT65, Ireland
We are delighted to announce our annual Mild Haemophilia Information Day taking place on Saturday 14th September 2024 in the Grand Hotel in Malahide, Co. Dublin.
Register free of charge by calling Lena in the office on 01 657 9900.

October Members' Conference 2024
2024-10-18 19:00 - 2024-10-20 13:00 | Midlands Park Hotel, Jessop Street, Portlaoise, R32 KV20, Ireland
We are excited to announce that our ‘October Members’ Conference’ will take place over the weekend of the 18th to 20th October 2024 in the Midlands Park Hotel in Portlaoise.
This year, our Adults Programme includes information-packed sessions on dental care, new therapies and the new opportunities they bring, von Willebrand disorder and more. Our children’s programme involves fun and games for the younger groups as well as educational and exciting activities for the older groups. See the programmes below for details.
Members, we are expecting a lot of interest in this event so please get your registrations in as quickly as possible to make sure you get a space!
Unfortunately we are now full up and registrations are closed.

Members’ Zoom meeting On New Product – Altuvoct
2024-11-14 19:00 - 20:00
The extended half-life Factor VIII concentrate currently used in Ireland is Elocta. However, in the coming months, this will be changed to a new enhanced extended half-life Factor VIII from the same company. This new product is called Altuvoct and was licensed by the European Medicines Agency in recent months. Altuvoct will be used by those currently on prophylaxis with Elocta or by those who may wish to consider a switch from Hemlibra. For those on Hemlibra, treatment for bleeding episodes will continue to be provided by Elocta as there is currently no suitable laboratory assay to measure Altuvoct in those currently treated with Hemlibra. Individual discussions will, of course, take place between your haemophilia treatment centre and you prior to the switch.
We have arranged a virtual meeting on the Zoom platform which will take place on Thursday 14th November at 7pm to discuss this new treatment with members. Professor Niamh O’Connell and Dr. Beatrice Nolan will attend this meeting.
Please see below the log in details for this meeting.
Join Zoom Meeting: https://us02web.zoom.us/j/6901047198?pwd=[REDACTED]
Meeting ID: 690 104 7198 Passcode: [REDACTED]
We are looking forward to seeing you there!

AGM & Conference 2025
2025-03-07 19:00 - 2025-03-09 13:00 | Galway Bay Hotel
We are delighted to announce our 2025 AGM & Conference. It is taking place this year in the Galway Bay Hotel in Salthill, Galway from 7th to 9th March.
Registration for the AGM is open from 10th December 2024 until 24th January 2025. Please fill in the online booking form below.
We have exciting adults and children’s programmes planned for the weekend, available to view below.
We can’t wait to see you there at our 2025 AGM & Conference!

Members, our AGM & Conference is now full up and registration is closed.

Ageing Conference 2025
2025-06-27 17:00 - 2025-06-29 13:00
We have organised an Ageing Conference, taking place the 27th to 29th June in the Springfield Hotel, co. Kildare.
The conference is open to members aged forty years and over who have an inherited bleeding disorder and their spouses or partners. Registration is opening on the 8th April 2025 and closes on the 14th May. You can find the live booking form below.
You can take a look at our preliminary programme here.
Registration is now closed for this event.

Parent & Child Overnight Event in Lilliput Adventure Centre
2025-07-12 10:00 - 2025-07-13 10:00 | Lilliput Adventure Centre
We are excited to announce a Parent and Child/Children Overnight Event at Lilliput Adventure Centre, Lough Ennell, Mullingar, Co. Westmeath on Saturday 12th July into the morning of Sunday 13th July. We are hoping to encourage as many parents as possible to attend this adventurous weekend with their child/children. It is hoped that this event will cultivate and build long lasting friendships and enhance the personal growth of your child/children with their bleeding disorder. Lilliput Adventure Centre will provide a full programme of activities all day on Saturday including lunch, dinner and overnight dormitory style accommodation. We will depart on Sunday after breakfast. Please find the exciting programme below.
The event is open to one parent with a maximum of two children with bleeding disorders. Children attending must be 6 years of age on Saturday 12th July. The cost of the event includes all activities, lunch, dinner and accommodation on Saturday and breakfast on Sunday. The cost for an adult is €30 and the cost for a child is €20. If you would like to attend this event with your child/children, please complete the online booking form, which will be available to fill out here on Monday 28th April.

Newly Diagnosed Information Day 2025
2025-09-06 11:30 - 17:00 | Grand Hotel Malahide, Grove Road, Malahide, Co. Dublin, K36XT65, Ireland
We are pleased to announce that we are holding a Newly Diagnosed Information Day on the 6th of September 2025, taking place in the Grand Hotel, Malahide. We warmly invite all parents of children recently diagnosed with haemophilia or other inherited bleeding disorder to attend this event.
At the event, you’ll hear from leading physicians in the field, have the chance to ask questions and make connections with other parents who have similar experiences.
We have a limited number of spaces for children aged 0-12 years.
To register free of charge for this event, please contact Lena in the office on 01 657 9900 or email info@haemophilia.ie.

October Members' Conference 2025
2025-10-17 19:00 - 2025-10-19 13:00 | Mount Wolseley Hotel, Mount Wolseley Hotel, Carlow, Ireland
We are happy to announce that our 2025 October Members’ Conference will take place over the weekend of the 17th to 19th October, in Mount Wolseley Hotel in Carlow. Our adults programme is packed with informative sessions looking at treatment and developments in bleeding disorder care as well as fun sessions like a debate and an activity on Sunday that will get the whole family involved. The children’s programmes feature exciting activities such as swimming, photography and comic book making!
As we are expecting a lot of interest in this event, we encourage you to get your booking in soon as you can to avoid disappointment.

As we are now full up, registration is closed. Please contact the office on 01 657 9900 to go on the cancellation list.

Women & Girls with Bleeding Disorders Information Day 2025
2025-11-08 12:00 - 17:00 | Grand Hotel Malahide, Grove Road, Malahide, Co. Dublin, K36XT65, Ireland
Registration is now closed.
We are delighted to announce a Women & Girls with Bleeding Disorders (WGBD) Information Day in November 2025. Taking place in the Grand Hotel in Malahide Co. Dublin, this event is aimed at both adult women and young girls (10 years of age and up). This information day will feature talks on menstruation, paediatric care, pregnancy and menopause, from leading physicians in this field. We warmly invite you to attend this information day, which we hope will help promote awareness of the needs of WGBD, as well as serving as an educational event.
We are pleased to provide a Children’s/Teenagers’ club for the young girls attending the information day. Girls and young adults are very welcome to attend all the talks, however, if you would prefer not to have your child attend some/all of the talks, we are delighted to give you this option.
Whilst our WGBD information day is free of charge, you must register to attend. You can do so on this page or by filling out the form sent out to relevant members. If you would prefer, you can also call Lena in the office on 01 657 9900 to book in.

AGM & Conference 2026
2026-03-06 19:00 - 2026-03-08 13:00 | Slieve Russell Hotel, Ballyconnell, Co. Cavan, H14 FE03, Ireland
We are thrilled to announce our 2025 ‘Annual General Meeting & Conference’ , taking place the 6th – 8th March in the Slieve Russell Hotel in Co. Cavan. Our AGM is taking place on Saturday morning, followed by a range of varied talks. Simultaneously, we will have an exciting children’s programme with fun and educational activities. Please find both programmes here:

Registration is now closed as we are fully booked. Please contact our office on 01 657 9900 if you would like to go on the cancellation list.

Parents Conference 2026
2026-07-03 17:00 - 2026-07-05 13:00 | Midlands Park Hotel, Jessop Street, Portlaoise, R32 KV20, Ireland
We are excited to announce a Parents Conference, taking place July 3rd – 5th in the Midlands Park Hotel, Portlaoise. This conference is open to members with children younger than 18 years of age. We will have a full children’s programme for all ages, allowing parents to enjoy the talks while their kids are entertained.
Our adults programme features talks on physio, comprehensive care, needlephobia, mental health and more.

Registrations are now closed.
