National Haemophilia Council
The National Haemophilia Council is a statutory body which was set up in 2001 following the recommendations of the Lindsay Tribunal.
To advise and recommend on the optimum provision of treatment and care for persons with haemophilia and related bleeding disorders.
To set the international benchmark for the provision of effective advice and inclusive involvement in optimising the management of haemophilia.
The Council advises and makes recommendations to the Minister for Health, Department of Health and Health Service Executive on:
- The care and treatment of all persons with haemophilia
- Protocols for the treatment of haemophilia
- Health services for persons with haemophilia
- Education and training of staff who provide services for persons with haemophilia
- Education and health promotion for persons with haemophilia and their families
- The changing needs of people with haemophilia, in order to help ensure that health services respond effectively to such changing needs
- Developments arising from research into haemophilia
- Appropriate support services for families of people with haemophilia
- A quality management system, including audit of services for people with haemophilia
The Council can be contacted as follows:
Ms. Gráinne Leach,
National Haemophilia Council,
Health Service Executive,