Statutory Bodies

The establishment of the National Haemophilia Council (NHC) was approved by the government following the recommendations of the Lindsay Tribunal in 2001, to advise and recommend on the optimum provision of treatment and care for persons with haemophilia and related bleeding disorders and to co-ordinate ongoing developments in all aspects of haemophilia care on a national basis.

The Haemophilia Product Selection and Monitoring Advisory Board (HPSMAB), although not a formal statutory body, allows the Society play a formal role in the procurement process for all factor concentrates and to monitor developments in relation to factor replacement therapy internationally.

The Consultative Council on Hepatitis C was established in 1996 to advise on all matters relating to Hepatitis C. The Consultative Council on Hepatitis C works to ensure that all Health Amendment Act (HAA) cardholders are up to date in relation to their entitlements to certain health services.