World Federation of Hemophilia
For nearly 50 years, the World Federation of Hemophilia (WFH) has provided global leadership to improve and sustain care for people with inherited bleeding disorders, including haemophilia, von Willebrand’s disease, rare factor deficiencies, and inherited platelet disorders.
The work of the World Federation of Hemophilia involves:
* Training experts in the field to properly diagnose and manage patients.
* Advocating for an adequate supply of safe treatment products.
* Educating and empowering people with bleeding disorders to help them live healthier, longer and more productive lives.
However, much more still remains to be done. The reality is that 75% of people with bleeding disorders still receive very inadequate treatment or no treatment at all. The percentage is even higher for those with von Willebrand disease and rare factor deficiencies.
The vision of WFH is “Treatment For All” and it is hoped that one day, all people with a bleeding disorder will have proper care, no matter where they live. Treatment for All means:
* Proper diagnosis, management, and care by a multidisciplinary team of trained specialists.
* Safe, effective treatment products for all people with bleeding disorders.
* Expanding services beyond hemophilia, to those with von Willebrand’s disease, rare factor deficiencies, and inherited platelet disorders.
The World Federation of Hemophilia (WFH), an international not-for-profit organisation, was established in 1963. It is a global network of patient organisations in 118 countries and has official recognition from the World Health Organization.
The World Federation of Hemophilia improves and sustains care for people with inherited bleeding disorders around the world.