International Development Work
The World Federation of Hemophilia (WFH) established a twinning programme 15 years ago. There are two types of twinning:
Treatment Centre Twinning
This is where an established haemophilia treatment centre partners with an emerging haemophilia treatment centre to help improve diagnosis and medical care for people with haemophilia.
This is where an established national member organisation partners with an emerging organisation to share knowledge in areas such as patient education, outreach, fundraising, publications and all other aspects of operating a successful haemophilia patient organisation.
Twinning aims to improve haemophilia care in emerging countries through a formal agreement and two-way partnership between two haemophilia organisations or treatment centres for a period of four years. The WFH provides annual grants to twins of between 2,000 USD and 8,000 USD.
There are many benefits to a twinning partnership. Twinning builds capacity through the transfer of skills and knowledge, leading to more capable organisations that are able to provide improved haemophilia services. Twinning also encourages collaboration, builds strong relationships among haemophilia organisations and treatment centres.
The Irish Haemophilia Society has twinned with many countries over the years including Greece, Hungary, Bosnia & Herzegovina and most recently Vietnam. The World Federation of Hemophilia twinning programme aims to improve and sustain care for people with inherited bleeding disorders around the world.