News 2021

Innovative education tool will make a big difference to children with haemophilia

A clever education tool for children with haemophilia and their families has been created through an innovative collaboration involving students from the Creative Media Department of the Munster Technological University, Children’s Health Ireland at Crumlin and the Irish Haemophilia Society. Read more >

Bruising, nosebleeds and heavy periods in women – the symptoms of an underdiagnosed inherited disease that affects one in every 1000 Irish people

Originally published in Irish Independent on May 24, 2021 – read it here in full. Co Meath man Donal McCann suffers from bleeding disorder Von Willebrand disease. He shares what life is like with the condition, his relief at not Read more >

‘It looked like a scene from the movie Carrie, as I was drenched in blood’

Originally published in The Irish Times on May 25, 2021 – Read it in full here. A clotting disorder means Shannon Carey suffers from regular bruising and heavy bleeding Having a nosebleed is not pleasant, but, thankfully, for most of Read more >

International Clinical Trials Day

There is a very strong culture of clinical trial involvement by the I.H.S. in Ireland for past several years with great clinical trial teams at CHI at Crumlin and St James’s Hospital. Trials foster a culture of innovation and research, Read more >

CUH Update re: Cyber Attack

Due to the recent cyber-attack on the HSE, Cork University Hospital (CUH) IT systems remain shut down at present however the main services in the Cork Coagulation Centre continue to be provided. – All of the clinics and treatments will Read more >

EHC: Medical situations where a third vaccine dose is recommended

The European Haemophilia Consortium have posted information on the decision of the French authorities to provide a third dose of vaccine to some people who have been recipients of solid organ transplants, on dialysis  or who are on strong immune-suppressive Read more >

NCC Update re Cyber Attack

We have been informed by the National Coagulation Centre that services have not been impacted by the recent cyber-attack and that all appointments and clinics are going ahead. However, they do not have any email access at the moment. Therefore, Read more >

CHI Message Re: HSE Cyber Attack

Children’s Health Ireland (CHI) continues to review the situation resulting from the recent HSE cyber-attack and having to shut down our IT systems. It is expected that our IT systems will be shut down for this week. We are pleased Read more >

Watch: ‘An Update From Barrestown’

We’ve been uploading recordings from our ongoing series of webinars so you catch up on the ones you’ve missed at your convenience. The latest of which is ‘An Update From Barrestown’ with Eimear and Mitch record on May 5, 2021. Read more >

Upcoming Webinars in May / June

Continuing with our series of Webinars, we have further meetings coming up on; Wednesday, May 19, 2021 @ 6pm: ‘Clinical Trials – An update from the CHI Crumlin’ with Aileen Molloy, CHI @ Crumlin  The May 19th webinar has unfortunately Read more >

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