Month: May 2021

A clever education tool for children with haemophilia and their families has been created through an innovative collaboration involving students from the Creative Media Department of the Munster Technological University, Children’s Health Ireland at Crumlin and the Irish Haemophilia Society. My Buddy Cormac, an informative and positive awareness animation about haemophilia, focuses on the experience …

Innovative education tool will make a big difference to children with haemophilia Read More »

Originally published in Irish Independent on May 24, 2021 – read it here in full. Co Meath man Donal McCann suffers from bleeding disorder Von Willebrand disease. He shares what life is like with the condition, his relief at not passing it on to his daughter and why he is telling his story to raise …

Bruising, nosebleeds and heavy periods in women – the symptoms of an underdiagnosed inherited disease that affects one in every 1000 Irish people Read More »

Originally published in The Irish Times on May 25, 2021 – Read it in full here. A clotting disorder means Shannon Carey suffers from regular bruising and heavy bleeding Having a nosebleed is not pleasant, but, thankfully, for most of us, it is not a regular occurrence. However, Shannon Carey has endured them, and other …

‘It looked like a scene from the movie Carrie, as I was drenched in blood’ Read More »

There is a very strong culture of clinical trial involvement by the I.H.S. in Ireland for past several years with great clinical trial teams at CHI at Crumlin and St James\’s Hospital. Trials foster a culture of innovation and research, and lead to faster implementation of new treatments. May 20th was International Clinical Trials Day …

International Clinical Trials Day Read More »

Due to the recent cyber-attack on the HSE, Cork University Hospital (CUH) IT systems remain shut down at present however the main services in the Cork Coagulation Centre continue to be provided. – All of the clinics and treatments will continue as planned, unless you are contacted. – The drop-in centre is open 8:30-5pm daily. …

CUH Update re: Cyber Attack Read More »

The European Haemophilia Consortium have posted information on the decision of the French authorities to provide a third dose of vaccine to some people who have been recipients of solid organ transplants, on dialysis  or who are on strong immune-suppressive therapies. This is due to the fact that the immune-suppressive therapies may cause them to …

EHC: Medical situations where a third vaccine dose is recommended Read More »

We have been informed by the National Coagulation Centre that services have not been impacted by the recent cyber-attack and that all appointments and clinics are going ahead. However, they do not have any email access at the moment. Therefore, if you wish to get in touch with the National Coagulation Centre, please telephone: – …

NCC Update re Cyber Attack Read More »

Children’s Health Ireland (CHI) continues to review the situation resulting from the recent HSE cyber-attack and having to shut down our IT systems. It is expected that our IT systems will be shut down for this week. We are pleased to say that the following services have not been impacted: – Haematology: Clinically urgent inpatient …

CHI Message Re: HSE Cyber Attack Read More »

We’ve been uploading recordings from our ongoing series of webinars so you catch up on the ones you’ve missed at your convenience. The latest of which is ‘An Update From Barrestown’ with Eimear and Mitch record on May 5, 2021.