News 2020

Our Summer Mag is out now!

The latest issue comes packed with loads of interesting articles from members and staff, news and updates, reports from events and more. In his CEO Report, Brian provides an update on Twinning, Gene Therapy and reports on the WFH Virtual Read more >

Watch I.H.S. Webinars On Demand

We’ve been uploading recordings from our ongoing series of webinars so you catch up on the ones you’ve missed at your convenience So far we have uploaded; Dental Care: The New Normal with Alison Dougall and Laura Parkinson Heavy Menstrual Read more >

Novel Treatments in Haemophilia & other Bleeding Disorders: A Periodic Review :: 2020 – Issue 1

The therapeutic landscape in haemophilia continues to change rapidly and it can be difficult to keep up to date. The Society has adapted a publication compiled by the European Haemophilia Consortium to produce a comprehensive update on ‘Novel Treatments in Read more >

Upcoming Webinars in July

Continuing with our series of Webinars and Q&A Sessions, we have further meetings coming up on; Wednesday July 8 @ 2pm: Treatment choice in an era of change: Decision process on choosing a new product with David Page, Canadian Hemophilia Read more >

Von Willebrand’s Disorder (VWD) Information Day 2020

The Irish Haemophilia Society are pleased to announce that an information day for people with von Willebrand’s Disorder (VWD) will now take place on Saturday, August 29 in the Castleknock Hotel, Dublin. This information day will give people an opportunity Read more >

Reported death of children on non-Haemophilia Gene Therapy clinical trial

In recent days, we have been made aware of the death of 2 children who were being treated as part of a clinical trial for Gene Therapy for a very serious childhood condition called X- linked myotubular myopathy (XLMTM). This Read more >

Haemophilia B Webinar :: July 18

Haemophilia B (or Christmas disease) is a bleeding disorder whereby there is a deficiency of factor IX. With so many new developments in the pipeline, in relation to haemophilia B, we are pleased to inform you that we have organised Read more >

Mild & Moderate Haemophilia Webinar :: Cancelled

The webinar for people with mild and moderate haemophilia planned for Saturday July 18 has unfortunately cancelled.