Month: May 2020

Upcoming Webinars

Continuing with our series of Webinars and Q&A Sessions, we have further meetings coming up on; Wednesday, May 27th @ 11am: Hemlibra Update for Parents with Dr Beatrice Nolan and CHI Crumlin Team Wednesday, June 3rd @ 11am – Exercise and Physical Activity for Children with Paula Loughnane, Senior Physiotherapist at CHI Crumlin Friday, June …

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CEO Update | May 22, 2020

Gene Therapy As Gene Therapy clinical trials in haemophilia continue, there is every possibility that we will see the first licenced Gene Therapy for Haemophilia A this year and for Haemophilia B in 2021. There has been ongoing discussion in the community internationally about which centres should be delivering Gene Therapy. EHC and EAHAD have …

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Physiotherapy Update: National Coagulation Centre, St James\’s Hospital

The physiotherapy team in the National Coagulation Centre (NCC) in St James\’s Hospital, is doing a survey of people with severe haemophilia that attend the NCC. They are looking for feedback on their annual physiotherapy and Haemophilia Joint Health Score (HJHS) assessment service for people with severe haemophilia. They hope to use the information to …

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Annual Report 2019

Our Annual Report 2019 is available now with overviews on our activities, events, support and finance, and more from last year. A hard copy will be be printed and mailed to member\’s in the future but for now, it\’s digital only. Read it below or download the PDF here.