News 2020

CEO Update | May 29, 2020

  Dental Care In this weeks E Zine, we include an update by Laura Parkinson, Dental Hospital on the use of telemedicine in Dentistry for people with bleeding disorders during the pandemic. Laura has been one of Alison Dougall’s key Read more >

Upcoming Webinars

Continuing with our series of Webinars and Q&A Sessions, we have further meetings coming up on; Wednesday, May 27th @ 11am: Hemlibra Update for Parents with Dr Beatrice Nolan and CHI Crumlin Team Wednesday, June 3rd @ 11am – Exercise Read more >

CEO Update | May 22, 2020

Gene Therapy As Gene Therapy clinical trials in haemophilia continue, there is every possibility that we will see the first licenced Gene Therapy for Haemophilia A this year and for Haemophilia B in 2021. There has been ongoing discussion in Read more >

Physiotherapy Update: National Coagulation Centre, St James’s Hospital

The physiotherapy team in the National Coagulation Centre (NCC) in St James’s Hospital, is doing a survey of people with severe haemophilia that attend the NCC. They are looking for feedback on their annual physiotherapy and Haemophilia Joint Health Score Read more >

Annual Report 2019

Our Annual Report 2019 is available now with overviews on our activities, events, support and finance, and more from last year. A hard copy will be be printed and mailed to member’s in the future but for now, it’s digital Read more >

Webinars & Zoom Sessions (Week: May 18 – 22)

Continuing with our series of Webinars and Zoom Sessions, up next we have; – Tuesday, May 19th @ 11am: Resilience for Children with Yvonne Duane, Psychologist at CHI Crumlin – Thursday, May 21st @ 11am: Update on the Lighthouse Project Read more >

Update from I.H.S. CEO | May 15, 2020

You may have noticed recently, if you logged onto the website, that the Society has a new tagline under the organization name. While we remain named “The Irish Haemophilia Society”, we have added underneath a tagline stating, “Representing people living Read more >

EHC Webinars on Women and Bleeding Disorders

In light of current events, the European Haemophilia Consortium (EHC) had to cancel their 2020 Conference on Women and Bleeding Disorders, however, in its place, the EHC are organising two very interesting webinars on Women and Bleeding Disorders. The Management Read more >

Webinars & Zoom Sessions (May 11 – 15)

Continuing with our series of Webinars and Zoom Sessions, up next we have; – Wednesday May 13 @ 11am: Resilience and Psychosocial Aspects of Coping with Yvonne Duane, Patricia Byrne and Gloria Rooney. –  Friday May 15 @ 6pm: Mother’s Read more >

Update from I.H.S. CEO | May 8, 2020

Communication As we complete yet another week of lockdown, albeit with some light at the end of the tunnel with a plan for re-opening the country, we continue to engage with members individually and collectively. Our outreach co-ordinator Robert Flanagan Read more >

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