Month: October 2019

We are always looking at ways of developing our media output, especially digital media, to better connect with members / friends and share info and updates. With that in mind, we are delighted to share a new podcast, the first of many hopefully. Recorded at our Member\’s Conference in Ballinasloe, it features Dr. Niamh O’Connell, National …

(Podcast) Lighthouse Project & Emicizumab Developments with Dr. Niamh O’Connell Read More »

Agreement has been reached for the provision of a new and innovative treatment for people with haemophilia, it was confirmed at the annual Irish Haemophilia Society members’ conference this weekend. Haemophilia is an inherited bleeding disorder where one of the clotting factors is missing – or present in lower amounts- and standard treatment for the …

Exciting new therapy for haemophilia Read More »

The therapeutic landscape in haemophilia continues to change rapidly and it can be difficult to keep up to date. The Society has adapted a publication compiled by the European Haemophilia Consortium to produce a comprehensive update on ‘Novel Treatments in Haemophilia & other Bleeding Disorders: A Periodic Review’. This document, a second issue of 2019, …

Novel Treatments in Haemophilia & other Bleeding Disorders: A Periodic Review 2019 – Issue 2 Read More »

National Haemophilia System PILThe iNDICI National electronic healthcare record (EHR) for people with Haemophilia and Allied Bleeding disorders will go live on October 14, 2019. While the system has been well tested and major glitches are not anticipated, they would like to make patients aware that there may be some delays in the centres on …

Update & Info: National Haemophilia System (iNDICI) Read More »

The weather is getting cooler, the evenings are getting shorter and the member\’s conference is almost upon us, which can only mean one thing, Autumn! With that in mind, our Autumn magazine is out now and you should all have received a copy in the post , but if you would like to read the digital …

Our Autumn Magazine is out now! Read More »