News 2017

AGM 2017

The AGM & Conference takes place this coming weekend in the Slieve Russell Hotel in Co. Cavan. Many thanks to all of you who booked in to attend this conference. Confirmation letters went out to everyone who registered approximately 3 Read more >

Clinical Trial Update: HAVEN 1

One of the new prospective treatments for people with haemophilia which are currently undergoing clinical trials is the bi-specific antibody called ‘Emicizumab’. This antibody treatment is designed to be a subcutaneously administered treatment which mimics the effect of factor VIII. Read more >

Calendar of Events for 2017

March Annual General Meeting & Conference Dates: 3rd – 5th March. Venue: Slieve Russell Hotel, Cavan. We will start off the weekend with registration and an informal buffet dinner on Friday evening, followed by a presentation on the history of Read more >

An update from Vietnam

The Irish Haemophilia Society (I.H.S.) have been working with and collaborating with the Vietnam Hemophilia Association (VHA) since 2010. Back then, haemophilia treatment in Vietnam, was mainly with cryoprecipitate, which is a much less effect form of therapy. Access to Read more >

Haemophilia Lighthouse Project

  eHealth Ireland is working to deliver an Electronic Health Record (EHR) for Ireland. As part of this, in 2016 eHealth Ireland is investing resources into 3 project areas known as the ‘Lighthouse Projects’ to build an understanding of the Read more >

Hepatitis C and Haemophilia

In mid-November 2016, the Society met with the new Minister for Health Simon Harris to brief him on the haemophilia landscape. We had a very constructive discussion where we pointed out the very positive impact of the Society’s involvement in Read more >

New National Coagulation Centre

Demolition work has commenced on the St James’s campus in Dublin to allow for the building of the new National Children’s Hospital on that site. As part of this, the National Centre for Hereditary Coagulation Disorders (NCHCD) and the Hepatology Read more >

Gene Therapy: New Technology

The onward march of science and haemophilia continue unabated. At the recent National Hemophilia Foundation Gene Transfer and Novel Technologies Workshop, there was over 30 presentations on current and future trends and developments in gene therapy, new approaches to extended Read more >

AGM 2017

The AGM and Conference will take place over the weekend of 3rd to 5th March 2017 in the Slieve Russell Hotel in Co. Cavan. AGM packs have gone out to members in the post. The closing date for registration is Read more >

Carrier Testing

Inherited bleeding disorders such as haemophilia can have an impact on daily life and psychological wellbeing not only of the affected individual but also on carrier mothers and other close family members. Before embarking on parenthood, known carriers or those Read more >

1 2