Year: 2016

New Children\’s Hospital

Planning Permission has been granted for the new children’s hospital in St. James’s Hospital. The Irish Haemophilia Society are delighted that planning permission has been granted, for the new children’s hospital project. This is great news for children, young people and their families. The project will bring together the three existing children\’s hospitals (Temple Street Children\’s …

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Travel Insurance

When you are travelling abroad Travel Insurance is vital.  Medical insurance should be checked well in advance of departure as it can be difficult to obtain for a person with haemophilia or related bleeding disorder.  A company that does provide insurance cover for pre-existing medical conditions including haemophilia is a company called Blue Insurance. They …

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vCJD update

The first case of variant Creutzfeldt-Jakob disease (vCJD) in a patient that is genetically different from all previous confirmed cases, has been reported in the UK. This suggests, as researchers have predicted, that the incubation of vCJD may take longer in certain groups of people. This 36 year old male patient was heterozygous at codon …

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Parents Conference

The Parents Conference 2016 will take place on 24th – 26th June in the Sheraton Hotel, Athlone, Co. Westmeath. As this is one of our biggest conference, we would ask you to register your booking as soon as possible as the children\’s groups fill up quite fast and places are allocated on a first come, …

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National Ambulance Service

We are pleased to announce, with immediate effect, through the work of the National Haemophilia Council (NHC), the National Ambulance Service (NAS), the Health Service Executive (HSE) and the Irish Haemophilia Society (IHS), that in an emergency situation, people with haemophilia, who need an ambulance and who are within a 60 minute transport time of …

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Fundraising

Help Us, Help You….. Fundraising is very important to the Society, especially in these difficult times.  However in difficult times people come into their own and it is wonderful to see people rallying around and making the extra effort to support us.  We want you to know we really appreciate it.  We are delighted to …

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Barretstown 2016

As you probably know already Barretstown is a specially designed camp that provides programmes of activities, adventure and fun for children with bleeding disorders and their siblings, which is also backed by a full medical team. There are different types of camps that may be suitable to your family, as follows: Family Camp: The entire …

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Support to members

The Irish Haemophilia Society offers education and support to all members living with haemophilia, von Willebrand\’s disease and other related bleeding disorders.  From the time of diagnosis there are many issues facing people with haemophilia, and their parents, families and friends. From how to recognise a bleed, to treatment, to support services.  Coming to terms with …

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